Information & Support

Online Support Groups

Support Groups/Wellness Directories

Phone Support:

First Candle

For Immediate Grief Support Call 1-800-221-7437

“First Candle is dedicated to reducing the rates of Sudden Infant Death Syndrome (SIDS), Sudden Unexpected Infant Death and preventable Stillbirths by educating caregivers and families, and supporting research. We are also committed to offering bereavement support for grieving families.”

Online Magazines:

Still Standing Magazine

We Need Not Walk Alone (Compassionate Friends)

SHARE Magazine

MEND Newsletter

Organizations:

Star Legacy Foundation

Stillbirth Education, Research, and Awareness. “The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss and neonatal death and improving care for families who experience such tragedies.  We are a community of families, health professionals, researchers, policy makers, and individuals dedicated to helping every pregnancy have a happy ending.” Learn more here.

M.E.N.D. (Mommies Enduring Neonatal Death)

A Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death. They publish free bi-monthly magazines, hold commemorative ceremonies, and host a variety of support groups throughout the nation.

M.E.N.D. also provides a compilation of resources that they have tended to for 19 years. You can find that resource list here.

Still Birth Day

“If you are miscarrying right now, or have just found out that when your pregnancy is over your baby will likely not survive, this website is the right place for you.” If you are interested in learning about all the things the Still Birth Day website strives to provide for families, start here. Still Birth Day is an organization that seeks to “nurture sources of perinatal bereavement, strengthen skills of healthcare professionals and increase healthy engagement of perinatal related needs among communities.” 

Return To Zero: H.O.P.E.

Return to Zero: H.O.P.E. (formerly the Return to Zero Center for Healing) is the nonprofit organization that developed organically as a result of the film’s positive impact. It is a community of bereaved families and their health providers who are transforming the culture of pregnancy and infant loss through awareness, education, and support.”

“Return To Zero: H.O.P.E. is a national nonprofit organization that provides services and support to parents who have experienced pregnancy and infant loss and hope to optimize care and healing for families by collaborating with women’s health care providers. [They] host holistic healing retreats for mothers who have experienced pregnancy or infant loss, provides educational materials, trainings, and simple interventions for maternal health providers to help mitigate trauma and future mental health impacts on parents, create online communities to support families who otherwise may be suffering in silence and isolation and empower parents to advocate for themselves using research-based guides and tools [they] have developed. Return to Zero: H.O.P.E. conducts impactful research to seek best practices to care for grieving families and educates friends and family to better support bereaved parents as they grieve.”

Return to Zero: H.O.P.E. “wants to be part of the solution and change the culture of pregnancy and infant loss by addressing racial inequity in accessing support services and resources after the death of a baby,”  and has specifically created this resource page for grieving Black parents.

The following collection of resources were collated by RTZ and can originally be found here:

1st Breath 

“Provides education, advocacy, and public awareness of stillbirth in addition to assisting families and professionals dealing with the death of a baby.”

Cuddle Cot Initiative  

“An in-room cooling unit that is the size of a small humidifier disguised inside of a Moses basket. Research has proven having a unit available to parents while they are in the hospital encourages families to spend time with their baby.” 

Go Pink and Blue 

“International pregnancy and infant loss awareness campaign created to invite the world to support what used to be a silent topic.”

Purposeful Gift 

“Increases awareness about neonatal organ, eye, tissue, and whole body donation and supporting families who are considering donation as an option.”

Share Pregnancy and Infant Loss Support 

“National organization serving 29 states. Offering support services to mothers, families, and professional support and education during and after the loss of a baby.” Share Español: Esperanza

The Birth Injury Center

The Birth Injury Center provides educational resources for new parents seeking information and assistance for birth-related injuries and prenatal complications. Birth Injury Center’s objective is to evaluate birth injury complications for our readers clearly and concisely. Different birth injuries are introduced throughout the website, and the types, symptoms, causes, treatments, and potential effects are explained in layman’s terms. Additional actionable items included on the site are recommendations for preparing for doctor appointments and finding relevant support groups. Despite the fact the website content is created and reviewed by a medical expert, none of the content on this website is intended to be a substitute for legal or professional medical advice. They wish to educate the public about the different birth injuries, such as stillbirth, and offer support in evaluating if malpractice has been a contributing factor to miscarriage or infant death.

Saying Goodbye

Part of the UK based non-profit Mariposa Trust, which has six divisions:

  • Saying Goodbye provides support for anyone who has suffered baby loss, at any stage of pregnancy, at birth or in infancy, whether the loss be recent or historic.
  • Growing You supports people who are pregnant following the loss of a baby.
  • Holding Hope provides information to those having fertility issues.
  • Waiting for You walks alongside people going through the adoption process.
  • Love in Every Tear helps guide people who are supporting others through loss.
  • So Cherished supports families who have received a terminal or life altering diagnosis over over their child.